If you have stumbled upon this website, chances are either you, or someone you know has been affected by Small Fiber Neuropathy.
Given that around half of cases are considered to be “idiopathic” (meaning there is “no known cause”) by conventional medicine, it shows there is much more to be discovered and learned about this condition.
This website is meant to be a chronicle of my personal journey through this condition, as well as my thoughts and observations along the way.
I was officially diagnosed in July of 2016, after having my symptoms misdiagnosed as being “anxiety” for more than 2 years. In my case, it appears to be non-length dependent, meaning it effects my entire body. I cannot tell you what a frustrating process it is when you are in pain and know there is a serious problem, yet are told by nearly every doctor you see that the problem is essentially “in your head”. It is only through relentless pushing and self-advocacy that the truth was revealed.
I am hoping that others who wish to learn more about this condition, can learn through the personal experiences which I share on this site. I also hope this site can be a means of coping and healing for me, as I share my experiences with others.
In time, I hope the concept of the site will evolve to help bring greater awareness of this condition to others, and perhaps also incorporate the experiences of others as well. I also hope to be a voice for those who suffer with this condition, but cannot express themselves in this manner.
What I post is not meant in any way to be medical advice, since I am not a doctor and have no medical background. I can only speak from my own experiences. Each person’s journey (as well as body chemistry) is uniquely their own, and any medical treatments should be prescribed by a medical doctor who is specialized in this area of medicine.