This morning I had an appointment with a Rheumatologist. She seems to share the view that my condition is likely autoimmune related. She ordered an additional 24 blood tests. She also told me that even if they all come out normal, it still wouldn’t rule out an autoimmune condition, as some of them are currently unknown, and so there is no test for them.
Over the past month, I’ve had a few new symptoms, which include dry and irritated eyes, as well as red patchy areas, which come and go on my skin. Also, I occasionally get spontaneous small cuts on my hands, which has never happened to me before except since last month. And I still continue to get occasional canker sores (which again, is a relatively new symptom).
I have to say, I am grateful that I do have some physical symptoms, which are relatively superficial in nature. Because of this, I can photograph / document these things, for the doctors to see.
I have come to learn that showing physical evidence (whether it a nerve biopsy, or a picture of a physical issue) is critical to creating a sense of urgency among medical practitioners, and for them not to brush aside my symptoms as being “anxiety” related.
My pain levels due to the SFN continue to come and go in ebbs and flows, but the intensity of the pains seems to be increasing with time. The past couple weeks has been in an uptrend from my average, but that could just as well reverse itself. It can be quite unpredictable.
For pain relief, I continue to use ice packs (in small time increments), keep my windows open (to get cold blasts of air), listen to hypnosis, take warm showers, etc. I am also doing things to keep my mind as distracted as possible. I sometimes use GABA supplements as well as Bach Remedy Spray, which I find has the tendency to create a temporary calming effect. A friend of mine recently bought me a diffuser for the holidays, I find using essential oils to be calming. During times when it gets really bad, I do a lot of praying. All these things help.
I also continue to do my best to keep my mind focused as positively as possible, and would like to think that regardless of however this unfolds physically for me, that spiritually I am growing and will continue to grow and head in the right direction.